ICD-10 Code for TSW

In late November, ITSAN submitted a proposal for a TSW ICD-10 diagnostic code to the CDC, with the support of the National Eczema Association, Allergy & Asthma Network and National Institute of Allergy and Infectious Disease allergy training program leadership.

A big THANK YOU to everyone who submitted a letter of support to the ICD-10 committee. We received 60 letters to add to our submission!

If the proposal is accepted early next year, it will go before a review board of the ICD-10 code committee March 20th, 2024. After the review, the committee will provide a window of time for public comment and we will need hundreds of individuals from our community to weigh in voicing their support of implementing the code to offset the pushback that still exists in the medical community around TSW. Stay tuned for more soon!

National Institute of Health’s (NIH) TSW Pilot Study

The participants of the NIH Pilot Study on TSW have been contacted and data about their experience and progress is still being followed and collected. Keep their eye out for the findings of the study to be published soon! We will keep you updated as we know more.

Patient Registry

ITSAN’s work on the Topical Steroid Withdrawal Syndrome Patient Registry continues on. We are in the programming stage with NORD (National Organization for Rare Disorders) and will soon move into the launch phase. This includes having our series of surveys reviewed by an IRB, or Institutional Review Board. An IRB is an administrative body established to protect the rights and welfare of human subjects recruited to participate in research. We are taking all of the steps necessary to ensure that your stories, experiences, and natural histories with TSW can be accurately collected and viewed as proper research. We are so excited to move forward and expect to launch in the first quarter of 2024. Keep an eye out!